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We are the 1 in 50,000: Our rare diagnosis
You never expect it, at least we didn’t. You hear about them, the 1 in a millions, the rare diagnoses… and it pulls at the heartstrings. You feel pity and sadness for the parents about to have their worlds…
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Please don’t leave me without a rainbow.
How is this even possible? How is this our reality? Amniocentesis… chromosomal abnormality… soft markers… trisomies… possibly incompatible with life… These can not be words spoken to me about my baby. Can they? About this baby girl I’ve carried…
